Day 429

      Things didn't go quite as expected yesterday....We took Katie to the clinic for her spinal tap and IV chemo.  I expressed my concern about her going under anesthesia when she has such a bad cough.  We were told the need for the chemo outweighed the concern.  Katie's numbers came back fine, so we proceeded.  We were bumped to the last patient though (even though we were first) because Katie was sick and they did not want to "contaminate" the procedure room.  - Which made for a very long fasting day for Katie!
      While Katie was under, they did a nose swab to test for viruses.  When we arrived home from the hospital, we got a call that Katie's swab test had come back positive.  She has RSV (virus).  They also tested her immuno gobulin level.  The normal IGG level is between 600 - 1000, Katie's is 375, which might explain why she keeps getting so many viruses. 
     Later in the day, Katie developed a fever of 102, and she got a lot more sick than she has been.  We are headed back to the clinic this morning.  They want to give her a 5 hour immuno gobulin infusion.  We are sorry she is so sick, and sorry she has to get another "poke," but we are glad there are medications available to help her!  - We are off to the clinic!