Just yesterday I thought, "It is such a relief that Katie's blood sugars have stabilized (by all we are doing to stabilize it) and I am so glad we are not having to worry about it anymore - at least I hope not." ...And then Katie had a low blood sugar at 4:00 a.m. this morning! There might be a few things that contributed to that (other than just the usual randomness of it). I had taken Katie & Conner to the park last night and we had a picnic dinner and played. Katie didn't eat much dinner because she was excited about playing. The bedtime snack she ate probably wasn't sufficient enough (plus I gave it to her a little earlier than usual). And then when my alarm went off at 3:15 a.m. I turned it off, and unfortunately dosed off, instead of getting up immediately. Katie awoke me around 4, by crying out. When I went in her room to check on her she said, "I need juice." I touched her and sure enough, she was in a clammy full body sweat! A low blood sugar (confirmed by the glucose meter). It was a terrible way to wake up - for both of us. It just reaffirms how important it is to be constantly on guard and very exact in following the protocol... and waking up as soon as the alarm goes off. (Katie and I are so tired - literally - of having to wake up at 3 a.m.)
We also had a scare with Scott's mom this week. They thought she was having a heart attack, but it turned out to be a huge blood clot in her aorta (the main vessel to her heart). It was an extremely large clot, and the doctor said if she hadn't gotten to the hospital when she did, she could have died. She spent 3 days in ICU, and she is still in the hospital.
We continue to deal with our other challenges as well... However, we are glad Katie is doing well over all. She was able to go back to school at the end of the week, and she was able to go to a friends birthday party. Katie enjoys learning, doing her school work, coloring, drawing, painting, cutting, gluing, and she loves to play outside. She loves jumping on the trampoline and swinging "as high as a bee...as high as the sky."
Scott and I have been watching a BBC series called "Lark Rise to Candleford." We have loved every minute of it! It has been a great diversion and we have enjoyed it immensely. At the end of Season 1 Episode 10, the narrator makes this statement: "It takes time, and sorrow, and experience to teach us the worth of the things that truly matter - and the things that truly matter are here, right here." I find this to be very true.
Sunday, October 27, 2013
Saturday, October 19, 2013
Day 754
We had an enjoyable Fall Break in New Mexico. Scott wasn't able to go with us, because he needed to work overtime in order to pay some upcoming expenses. Katie cried every day (usually more than once a day) for her Daddy. We had fun, but we missed Scott, and we were glad to come home to him again. (Our computer wasn't working this week. So, I wasn't able to post on the blog).
Katie went to the clinic on Tuesday for her monthly dose of chemo. I can't believe another month has gone by!... Katie also needed an IGG infusion, so it ended up being a really long day. Katie "only" has 3 more months of treatments left. I haven't really felt a sense of relief about that yet, but I am so glad the end is near!
Right now we are dealing with the effects of the chemo and the heavy steroids - it is not fun or easy for any of us (it is miserable really), but we are making it through it.
I recently read the following quotes in the Church News (Week of September 22, 2013):
"We are not born into this world with fixed habits. Neither do we inherit a noble character. Instead, as children of God, we are given the privilege and opportunity of choosing which way of life we will follow - which habits we will form.
"Confucius said that the nature of men is always the same. It is their habits that separate them.
"Good habits are not acquired simply by making good resolves, though the thought must precede the action. Good habits are developed in the workshop of our daily lives. It is not in the great moments of test and trial that character is built. That is only when it is displayed. The habits that direct our lives and form our character are fashioned in the often uneventful, commonplace routine of life. They are acquired by practice.
"We need to organize our lives according to gospel principles and chart a right course as we journey toward eternal life. In the conduct of our lives we learn that good character-building habits mean everything. It is by such behavior that we harvest the real substance and value of life. The way we live outweighs any words we may profess to follow" (Elder Delbert L. Stapley, 1972 General Conference).
"We sow our actions, we reap our habits; we sow our habits, we reap our characters; we sow our characters, and we reap our destiny" (C.A. Hall).
Katie went to the clinic on Tuesday for her monthly dose of chemo. I can't believe another month has gone by!... Katie also needed an IGG infusion, so it ended up being a really long day. Katie "only" has 3 more months of treatments left. I haven't really felt a sense of relief about that yet, but I am so glad the end is near!
Right now we are dealing with the effects of the chemo and the heavy steroids - it is not fun or easy for any of us (it is miserable really), but we are making it through it.
I recently read the following quotes in the Church News (Week of September 22, 2013):
"We are not born into this world with fixed habits. Neither do we inherit a noble character. Instead, as children of God, we are given the privilege and opportunity of choosing which way of life we will follow - which habits we will form.
"Confucius said that the nature of men is always the same. It is their habits that separate them.
"Good habits are not acquired simply by making good resolves, though the thought must precede the action. Good habits are developed in the workshop of our daily lives. It is not in the great moments of test and trial that character is built. That is only when it is displayed. The habits that direct our lives and form our character are fashioned in the often uneventful, commonplace routine of life. They are acquired by practice.
"We need to organize our lives according to gospel principles and chart a right course as we journey toward eternal life. In the conduct of our lives we learn that good character-building habits mean everything. It is by such behavior that we harvest the real substance and value of life. The way we live outweighs any words we may profess to follow" (Elder Delbert L. Stapley, 1972 General Conference).
"We sow our actions, we reap our habits; we sow our habits, we reap our characters; we sow our characters, and we reap our destiny" (C.A. Hall).
Thursday, October 3, 2013
Day 738
Katie had a pretty good week. Although she did have another low blood sugar this week, and that was disconcerting. We have increased her daily steroid and we hope that will solve the problem. We are glad she has been able to go to preschool and have fun with her friends.
We are going to New Mexico for Fall Break to spend time with my mother and my family. We are glad for the chance to get away for awhile and have some fun. I found two quotes that I wanted to share this week.
"In all conditions, we can choose the right with the guidance of the Spirit. We have the gospel of Jesus Christ to shape and guide our lives if we choose it. And with prophets revealing to us our place in the plan of salvation, we can live with perfect hope and a feeling of peace." (Henry B. Eyring, "Mountains to Climb," Ensign, May 2012)
"We pray with trust for strength and guidance - just as our forebears did. That's what it means to walk with faith in every footstep. It was so for our pioneer ancestors, and it must be so for us today. We must instill in our children and grandchildren the same spirit that drove the footsteps of the pioneers.... We must ever be on our guard that we do not become casual in keeping God's commandments, in abiding by His laws, and in being honest and trustworthy in all that we do.... May we find the strength and courage to face our future as they faced theirs." (M. Russell Ballard, "Pioneer Faith and Fortitude—Then and Now")
We are going to New Mexico for Fall Break to spend time with my mother and my family. We are glad for the chance to get away for awhile and have some fun. I found two quotes that I wanted to share this week.
"In all conditions, we can choose the right with the guidance of the Spirit. We have the gospel of Jesus Christ to shape and guide our lives if we choose it. And with prophets revealing to us our place in the plan of salvation, we can live with perfect hope and a feeling of peace." (Henry B. Eyring, "Mountains to Climb," Ensign, May 2012)
"We pray with trust for strength and guidance - just as our forebears did. That's what it means to walk with faith in every footstep. It was so for our pioneer ancestors, and it must be so for us today. We must instill in our children and grandchildren the same spirit that drove the footsteps of the pioneers.... We must ever be on our guard that we do not become casual in keeping God's commandments, in abiding by His laws, and in being honest and trustworthy in all that we do.... May we find the strength and courage to face our future as they faced theirs." (M. Russell Ballard, "Pioneer Faith and Fortitude—Then and Now")
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