Katie was diagnosed with Acute Lymphocytic Leukemia on November 8, 2011.

Sunday, October 27, 2013

Day 762

     Just yesterday I thought, "It is such a relief that Katie's blood sugars have stabilized (by all we are doing to stabilize it) and I am so glad we are not having to worry about it anymore - at least I hope not."  ...And then Katie had a low blood sugar at 4:00 a.m. this morning!  There might be a few things that contributed to that (other than just the usual randomness of it).  I had taken Katie & Conner to the park last night and we had a picnic dinner and played.  Katie didn't eat much dinner because she was excited about playing.  The bedtime snack she ate probably wasn't sufficient enough (plus I gave it to her a little earlier than usual).  And then when my alarm went off at 3:15 a.m. I turned it off, and unfortunately dosed off, instead of getting up immediately.  Katie awoke me around 4, by crying out.  When I went in her room to check on her she said, "I need juice."  I touched her and sure enough, she was in a clammy full body sweat!  A low blood sugar (confirmed by the glucose meter).  It was a terrible way to wake up - for both of us.  It just reaffirms how important it is to be constantly on guard and very exact in following the protocol... and waking up as soon as the alarm goes off.  (Katie and I are so tired - literally - of having to wake up at 3 a.m.)
     We also had a scare with Scott's mom this week.  They thought she was having a heart attack, but it turned out to be a huge blood clot in her aorta (the main vessel to her heart).  It was an extremely large clot, and the doctor said if she hadn't gotten to the hospital when she did, she could have died.  She spent 3 days in ICU, and she is still in the hospital.
     We continue to deal with our other challenges as well...  However, we are glad Katie is doing well over all.  She was able to go back to school at the end of the week, and she was able to go to a friends birthday party.  Katie enjoys learning, doing her school work, coloring, drawing, painting, cutting, gluing, and she loves to play outside.  She loves jumping on the trampoline and swinging "as high as a bee...as high as the sky." 
    Scott and I have been watching a BBC series called "Lark Rise to Candleford."  We have loved every minute of it!  It has been a great diversion and we have enjoyed it immensely.   At the end of Season 1 Episode 10, the narrator makes this statement: "It takes time, and sorrow, and experience to teach us the worth of the things that truly matter - and the things that truly matter are here, right here."  I find this to be very true.

3 comments:

  1. We had so much fun having her here. I'm glad she and Evie are friends!

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  2. Uncle Mell told us about Aunt Marie. What a scare!

    I look forward to Katie's health crisis being behind you. I would love to see new photos of the children. Your family is in my prayers.

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  3. You continue to amaze me. I love the quote! Thanks for sharing your life and learning with me and others.

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