Day 12

     Our life got whole lot easier today - well, we made our life a whole lot easier today.   We had the doctors find her medications in a tablet form.  We had asked twice in the hospital for that and had been told it wasn't possible or available.  However, after the terrible experiences we have had the last couple of days forcing Katie to take her oral (liquid) medications, (and thanks to advice from Suzie) we told them we wanted tablets if available.  Turns out, only one medication wasn't available in tablet form, but they can give it to her once a month intravenously instead of us having to give it to her orally.  The other medications we now have in tablet form and we crushed them and hid them in her food (shhh! Don't tell her!!) and to our great joy, it worked!!!  So, she took all her meds today, without so much as a whimper - whereas yesterday, it took both of us to hold her down and force her mouth open, and pour it down her throat, while she screamed and cried and threw up because she was so upset.  (It was traumatizing for all of us -twice daily!)  Today was sooo much better!  Hurray for small victories! 
     Every day is a roller coaster of goods and bads.  We are physically and emotionally exhausted by the end of the day.  We spent 2 & 1/2 hours at the clinic today.  We still aren't into the swing of things yet.  I can't seem to get caught up, or get done what needs done...but today we are glad for Divine intervention.  We feel that we are being helped at the right time by the right people.  It is through your acts of kindness that we are feeling our Heavenly Father's love.