Katie was diagnosed with Acute Lymphocytic Leukemia on November 8, 2011.

Saturday, September 29, 2012

Day 325

     Still using the iPad... So this will be shorter than usual.   As I said, I took Katie to the clinic on Tuesday and they put her on antibiotics.  That night was another long night.  Katie's fever maintained and she got a rash and began itching.  I thought she was having an allergic reaction to the antibiotics, so I watched her close through out the night.  The next morning when she woke up, she threw up.  I called the clinic when they opened.  They thought it was probably an allergic reaction as well or a combination of things (chemo, antibiotics, fever), so they prescribed a new antibiotic for her.  Katie's fever went down that day so we did not feel a need to take her back to the clinic.  Then yesterday a thought kept nagging at me... Katie could not get her 2 year immunizations because of the leukemia and treatments (she cant get immunized until her treatments are completed)... And her "rash" was no longer looking like just a rash... And now today I know it is not just a rash!  I don't know for sure what it is, but it is not just a rash!  After researching on the internet, my best guess is chicken pox!!!  The clinic is closed on the weekends (of course) so I had to call the doctor on call at the hospital.  Her guess is it is chicken pox or a virus that acts like chicken pox.  But since Katie doesn't have a fever anymore and is acting fine, she said I didn't have to bring her to the ER unless she gets worse.  I check her every few minutes!  Poor girl!
     Tonight I gave her an oatmeal bath to help soothe her - Conner hopped in there with her.  I think I need a soothing bath too!  It has been a stressful and tiring week.  The blog isnt working, my new dishwasher isn't working right, sick kids, husband at work - today Conner plugged up the toilet and it overflowed (more than once) and he didn't tell me... And then Katie shattered a jar of pickles all over the kitchen floor, I  had to mop like 5 times to get all the sticky juice and specks of glass up.... Just to list a few...but really, in perspective it is all good.
     I had a strange thought this week.  Scott and I recently purchased some more food storage.  We have always felt it is important to be prepared for any type of emergency that may arise, so we have planned and prepared.  However if there is some type of local, national, or world catastrophe - even something as small or as simple as a transportation strike - could mean that my daughter's chemo and other medications would not be available to us.  So no matter how much we prepare, that would be something totally out of our control - and how utterly devastating that would be!!!  So, like I said, in perspective - broken pickle jars, overflowing toilets, and even chicken pox, is not that big of a deal.  I am grateful every day that the medications my daughter needs to stay alive are available to us.  How blessed we are for the advantages we have in this country, and to live in this day and time.  What a blessing my sweet children are to me.  I love them so!

2 comments:

  1. So sorry you are having a rough week!! You are in my prayers and I hope for a better week this week for you.

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  2. Thinking of you lately and thought I'd drop by and see what the latest is in your life and family. glad to see that despite the regular challenges, all is well for now. my daughter Serenity is now 4 1/2 months and my stepchildren are 8, 5 and 3 (on Oct 6). They sure keep me busy so I know exactly what you meant about you wanting and oatmeal bath too LOL. I can certainly relate.

    well, have a great Sunday.
    love ya,
    Christy Call

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