Katie was diagnosed with Acute Lymphocytic Leukemia on November 8, 2011.

Monday, December 10, 2012

Day 398

     Katie's fever seems to have broken today.  So hopefully we are finally heading in the right direction.  Katie had her 3rd x-ray today.  The results were still inconclusive.  Our doctor consulted with several other doctors.  It could be phenomena, fungal, or a virus.  If Katie spikes another fever, or if she is still breathing hard tomorrow, they are wanting to do a cat-scan and also scope down into her lung.
     If she is better tomorrow, then I guess we are going to assume it is viral.  I think she is past having a fever (finally), but her cough still isn't any better.  I don't know what to expect.  As much as we don't want to be here, I am afraid to take her home with such a bad cough, and resume her chemo treatments.... They haven't given us any kind of timeline on anything, because it is just day to day decisions based on how she is doing.
     One thing is for sure, Katie is ready to be home.  She is done with being poked, having labs drawn, medications, etc....  Today we were glad Conner was able to come and spend a few hours with us (rather than just a quick hi and bye).  We have missed him!  When Katie gets poked she always cries for her Daddy and Conner.  She will repeat over and over, "Daddy, Daddy, I want you Daddy!  Conner, Conner, I want you Conner!"  (And then she cries, "Owie Mommy owie, no Mommy no!"  -- It's not fun).  Conner asked if he could sleep here tonight too.  It is hard for him to understand all this.  And it is really hard for Katie to understand all of this!
     We are grateful for your prayers!  Please keep praying for Katie.

2 comments:

  1. My thoughts, prayers and tears have been for you the last few days. My heart is just broken that this is happening. I am glad the fever broke and hopefully she is on the road to recovery. As hard as it is having her want to go home, I would think that is a good sign. If she feels good enough not to want to be there then she must be getting better. We will continue to pray.

    Love,
    Kelly

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  2. Our thoughts and prayers are continually with little Katie and your family for strength to endure!!! It is extremely sad to see them hurt!!
    We love you,
    Bruce & Jerolyn

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