Katie was diagnosed with Acute Lymphocytic Leukemia on November 8, 2011.

Thursday, December 13, 2012

Day 401

     We got another surprise today...We got to come home!  We just got home around an hour ago, about 4:30 p.m.  I wanted to write this before I crashed.  It has been a long 7 days.  We had some very scary moments - and just a scare overall.   But we are glad to be home!  Katie's fungal test came back negative - and we feel very blessed!  We are still waiting the results of the valley fever test. 
     Katie's numbers were all very good today, so the doctor let us come home.  Scott is picking up her antibiotic right now.  She will be on an antibiotic 3 times a day for the next 7 days.  We will be taking her into the clinic for a check-up next Wednesday.  We are hoping all will go well.
     Katie has had 2 IV's for the past week.  This was very hard on Katie because they put hand guards on her hands, (which Katie calls casts) and she hasn't been able to feed herself, color, or play.   Yesterday afternoon they removed one of the IV's and hand guards.  At 4:00 a.m. this morning, after I took her to the bathroom for what seemed like the 100th time, I put her back in bed and then went to wash my hands.  When I walked back into the room, Katie was lying on her bed smiling.  I asked her what she was smiling about, and she said, "Isn't it great that I have one of my hands back!!" I smiled at her and told her, "Yes, that is great!"  She said, "Yah, now I can feed myself cereal and stuff."
     I think it is great that after everything she has gone through in the past week (year), she can wake up at 4 in the morning, and still find something to be glad about.  She is a "Pollyanna!"  She is an inspiration and we love her.  (The bummer of it all was that at 5 a.m. the nurse messed up the one IV Katie had left, so they had to remove it and put in another one). 
     It has been a difficult week for her (and us) but we feel very blessed things have gone as well as they have.  She is home, she has two hands back now...and she is playing and smiling.  And that is "great!"

6 comments:

  1. reading that made me smile. what a girl:) so glad you are able to be home now.

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  2. Wonderful, I'm so glad she is home. I hope she continues to get better. Prayers for all of you to get some much needed rest.

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  3. We are so glad you are home! Even though we don't see you every day when we drive by and know you are home it makes us so grateful because we know Katie is better when you are home! You have been missed!

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  4. i just checked in on your blog now and am so sorry you've had such a hard week. I am praying that you guys get the rest and relief you need being out of the hospital. We were so glad to get your Christmas card. The girls talk to katie on it. = ) they pray for her everyday.... Avery always adds her to her meal prayers, too.
    love ya
    CeCe

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  5. Wow what a week. Katie is so darling with the things she says and her positive attitude. I am so glad you guys get to be home. Will you still plan to go to Farmington? I hope you will be able to still make the trip. As always you are all so amazing and strong and an inspiration to all of us. Love you

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