Katie had a hard week, but she is doing better. She is having tummy troubles again (still). Based on what is happening this month I think it is safe to say Katie was not the "source" of the stomach flu that hit so many in my extended family last month. :) It is however, distressing. I called the clinic yesterday to speak to a nurse, but missed her return call. So now I will have to wait until next week. Along with her tummy troubles, I wanted to talk to the nurse about Katie's medication. As I said, the doctor increased all of Katie's meds. We had never met this doctor before, and when she gave me the new prescriptions, I noticed one of the prescriptions was actually a lower dose than what she had been taking. When I questioned her about it, she said, "Oh, did I calculate wrong?" I told her I didn't know...She checked and rewrote the precription...Scott and I still aren't feeling comfortable about it, so we thought we would ask to have all her prescriptions double checked - which is hard, because we don't want to offend the doctor - but more importantly, we need to take care of Katie.
Katie climbed in my bed at 3 a.m. this morning (which she will sometimes do when she knows Daddy is at work and that side of the bed is open). She instantly fell back asleep - but not me. She feels sweaty - which could just mean she is hot, but it could also mean she is having a low blood sugar. I laid there next to her for an hour, feeling her, listening to her, watching her, wondering if I should poke her and check her blood - that way I would know if she was okay or not and then I could go back to sleep, but that would wake her up and make her cry - so poke her or wait??? I will wait a little longer, before I wake her, if I feel I need too.
Obviously, we still don't have her blood sugars under control. I can't remember how much I updated about that, but Katie is on a daily low dose steroid now, because the corn starch and bedtime snack was not working, to keep her blood sugars up during the night. (and it was corn starch, not corn syrup - I have had several people ask me if I mistyped that - I wish it had been corn syrup, that would have been much more pleasant for her to take!). Anyway, when we were in St. George, about a week after Katie started the steroid, we noticed changes in her, she seemed weak, moody, and hungry. We knew we couldn't do 7 months of that! So we made the decision to cut the pill down to a quarter pill. That didn't work! Two low blood sugars later, and back in Mesa, I called the Endocrinologist. He said to try half a pill - so that is where we are now - and Katie just finished her round of high dose steroids- and now is when the low blood sugars usually start - so I am waiting, worrying, watching, to see how she does on this half dose...
We found out yesterday that Scott's dad has cancer in 2 places. He has a nickel size mass in his lung and a tennis ball size tumor on his kidney. They will have to do 2 separate surgeries. They will operate first on his lung, and then later they will remove the tumor and one of his kidneys. Right now that is all we know. He may not need any further treatment after that, but I guess they will know for sure after they operate. Scott's mom somehow tore her meniscus in her knee a couple of days ago, so what mobility she had gained, she has now lost - she can get around in a wheelchair, but it is the getting up and down that is the problem again. She is still waiting to see about her surgeries.
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