Katie was diagnosed with Acute Lymphocytic Leukemia on November 8, 2011.

Thursday, May 30, 2013

Day 610

     Still on the iPad... Katie got her labs drawn and her monthly dose of I.V. chemo yesterday.  Katie's ANC numbers are still too high.  If they are still high next month, then they will increase her chemo dose again.  We hope her numbers go down!  Dr. Dana asked what the Endocrinologist found out - we told her they couldn't find the cause of what was wrong, and they attributed her low blood sugars to her treatments.  Dr. Dana was very skeptical about that, she doesn't think that is the cause...I guess we will all found out in about 8 or 9 months from now when Katie stops her treatments.  For now we are doing the corn starch.  Katie still is having occasional low blood sugars, but not as often - and when she has one, we know what to do to help her - which is still worrisome, but I think the best we can do for now.   On kind of a funny note - well, kind of funny, but not really - I must add that when Dr. Dana said she did not think Katie's treatments were the cause of her low blood sugars (because that would be rare and unusual), she also said, "but then again this is Katie we are talking about!  She seems to have all the really weird things happen to her."  -- That's for sure! --  Katie has had to go through a lot of "extra" problems since all of this started.  However, she is responding to her treatments, and for that we are grateful and glad!
      Katie did not have a good day today, which we weren't expecting - at least not yet anyway - she reacted fast this time to her chemo and steroids.  She was in bed for most of the day and very emotional.  Scott and I couldn't believe how bad she was already,  it usually takes longer for it to kick in.  Maybe she was already weak from the scorpion sting, or maybe it is the higher dose of chemo, something....  And to top it off, Katie's fish died today - that didn't help matters.  Katie and Conner both had a fish - and it was Katie's fish that died.  Off and on today there were tears, and she kept saying, "I miss my fish."  I think she was finally okay with the idea of her fish being in heaven, when I told her our dog Cozy (who is also in heaven) would take care of her fish.  -Katie said, "Cozy wont put my fish in her mouth will she?"  I assured Katie that Cozy wouldn't do that, and that Cozy would be a good "mommy" and take care of her fish for her.  
     I will not be posting on the blog for a couple of weeks.  Katie, Conner and I are going to New Mexico to spend time with my mom and family.  We were supposed to leave on Saturday, but Scott and I decided that I should leave in the morning (Friday) - if I waited until Saturday, I probably wouldn't be able to go, because Katie will most likely keep getting worse every day now for the next week or two.  And my mom needs me there this next week.  I don't anticipate that it will be a fun car ride tomorrow (but a better car ride than it would be on Saturday) and I will make as many stops as Katie needs.  I hope she will be able to sleep a lot - I hope.  Scott left for a youth camp today, and Nathan is flying out tomorrow to work on a ranch in Montana for the summer...and the two little ones and I are off to New Mexico.  I will post again on the blog when we return - in about two weeks.
   

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