Day 734

     Katie finished her heavy dose of steroids on Monday.  I never thought I would be glad for the 5 days of heavy dose steroids, because they take such a toll on Katie, but now in some ways I am glad.  During that 5 day period, I don't have to wake Katie up in the middle of the night to feed her, and she doesn't have to take the corn starch before bed - which she says tastes disgusting (and it makes her gag).  Plus, Katie's rash clears up during those 5 days - for some reason.  - And sleeping through the night is a beautiful thing for both of us!
     However as the heavy steroid wears off, we always have to worry about the hyperglycemia.  We thought we had it managed with the low dose daily steroid, Proglycem medication, bedtime snack, 3 am snack, and corn starch - but Katie had another low blood sugar this week.  Scott said he thought it was because she got such a heavy dose of chemo this time... But nobody really knows when it is going to happen, or why it happens.  So it is always a worry.  Plus, her rash is coming back.
     Katie has her strength back and she is feeling much better.  This heavy dose of chemo was hard on her - especially her tummy.  We are glad we only have one more spinal tap left (in December).  The doctor said maybe we should think about not doing the last one, because of what happened this time with the hyperglycemia.  The doctor said, "I don't think that in the big scheme of things one spinal tap would make a difference one way or the other."  I don't know (for sure) what we will decide come December - but when a doctor tells you they don't "think" it will make a difference either way - then that really isn't good enough assurance for us not to do it.  We don't want to guess wrong!  The "crisis" of Katie's hair falling out again, seems to have passed.  Her hair has stopped falling out - and I am very happy about that - and so is Katie!  Her hair is finally long enough for two ponytails on the side of her head, and she is super excited about that, she has had me put ponytails in her hair every day this week! =)
     Scott's parents are recovering well from their surgeries.  It is a long process, but they are getting through it.  Scott is almost done with his biology class - one more week - we will be super glad when that is done and Scott can have a break (for awhile). 
     "Wherever you are, whatever your circumstances may be, you are not forgotten.  No matter how dark your days may seem, no matter how insignificant you may feel, no matter how overshadowed you think you may be, your Heavenly Father has not forgotten you.  In fact, He loves you with an infinite love.
     "Just think of it: You are known and remembered by the most majestic, powerful, and glorious Being in the universe!  You are loved by the King of infinite space and everlasting time!  He who created and knows the stars knows you and your name... God loves you because you are His child.... If you will only allow His divine love into your life, it can dress any wound, heal any hurt, and soften any sorrow"  ("Forget Me Not," Dieter F. Uchtdorf).