Day 36

     Long night...long day.  So, I am going to keep this short.  Katie went in for her procedure today.  She got a dose of chemo in her spine and a different dose of chemo in her port.  The nurse had trouble accessing Katie's port (not sure what the deal is with that) but that set the mood for the morning.  Things didn't go very smooth, but they went.  (Scott told me today that when they couldn't access the port at the hospital the other morning that the needle was bent when they pulled it out!)  This morning the nurse told me she thought the port had flipped over and we would have to go back to the surgeon.  However, they were able to access the port when Katie was under anesthesia, so...hopefully it is okay, and we won't have any problems with it.  I hope! (pray). 
     Our current Primary Doctor called this evening and said the board of doctors met to discuss Katie's case and that the consensus on what to do for Katie was not unanimous.  What does that mean??? I don't know for sure.  He said they didn't all agree, and blah, blah.  We are meeting with another doctor on Monday.  We will see what he says, as he was on the board as well...
    Anyway, Katie is doing fine.  She has complained of her back hurting from her spinal tap.  Hopefully tonight we will all get some sleep.  Today I am glad someone was kind enough to bring our family dinner.  We are so thankful for the kindnesses large and small that people have shown us.  Here is a quote my niece sent me.  "When you feel like giving up, remember why you held on in the first place." (author unknown).  Today was a day of just "holding on".