We were at the clinic for over 7 hours yesterday. Katie's treatments went okay. There is a national shortage on one of the chemo medications she needs and so PCH is rationing this medication (Mexotrexate). Because of this, our doctor issued a different type of chemo medication yesterday into Katie's spine. Dr. Dana assured us this won't negatively impact her recovery. They have allotted enough of the Mexotrexate for Katie to finish the remainder of this phase (she has only one more treatment left). She won't need any more of that particular medication during the next phase (mid-March through mid-May), but if PCH doesn't get more of the Mexotrxate during that time, then there will not be enough for Katie, when she is next due. Dr. Dana said not to worry about it now, that we will deal with it, if and when that happens.
Katie's tummy has been hurting and we have gone through a lot of diaper changes since yesterday evening and we had to change her sheets in the middle of the night. She woke up this morning thirsty and with her tummy still hurting. I feel slightly helpless to help her. Katie takes it all in stride though, she is an amazing little girl. Accessing her port seems to get harder every time instead of easier - meaning Katie is more scared and traumatized before and during the accessing. I have to hold her down, by holding her arms and hands behind her back while they access her port. It is hard on me - which must show, because when the nurses finish, they always ask me if I am okay. But we made it through yesterday and I was glad to have Scott there.
"Be strong and of a good courage; be not afraid, neither be thou dismayed; for the Lord thy God is with thee whithersoever thou goest." (Joshua 1:9) Today we are glad to have found such a good doctor. Dr. Dana is a very good doctor and that has brought us comfort and reassurance.
No comments:
Post a Comment