Katie was diagnosed with Acute Lymphocytic Leukemia on November 8, 2011.

Friday, April 20, 2012

Day 163

     Katie went in this morning for her spinal tap.  We thought ahead, and took her chemo shot with us, which Scott gave Katie while she was under anaesthesia (one less day of shot trauma!).  We have gone from 1 pill to 3 pills we are to trying to "sneak" to Katie each day - and that is proving to be a challenge!  (One pill for nausea, one to prevent mouth sores, and one chemo pill).  The chemo pill is an extra challenge, because it has to be taken on an empty stomach and given without citrus or dairy.  So...three pills a day, to a girl who will fight tooth and nail about taking any oral medication.  Plus the shot.  We are not having fun with this. 
     We have been told Katie will throw-up if we do not give her the anti- nausea medicine prior to giving her the shot.  We were told again yesterday to "expect" Katie needing blood and platelet transfusions in the next few weeks and to "anticipate" a hospital stay.  Apparently the chemo shots we have to give, comes with a lot of side effects.  Katie will be getting the shots at home, this week and next - along with the pills. 
     Katie is not feeling well today.  She is still smiling for the most part, because that is who she is and what she is all about, but she is feeling yucky and tired.  Conner still isn't quite himself yet either - and neither am I.  They are napping and I am tired and am going to join them now.  Today I am glad for nap time. 

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